About / FAQ
Cochlear Gene Therapy is an independent educational registry of human hearing-loss gene therapy studies and the public evidence supporting their scientific and clinical details.
Maintained by
This registry is maintained by Saaim Khan and Eliot Shearer, MD, PhD.
Institutional affiliation
Translational Hearing Genomics Laboratory at Boston Children's Hospital and Harvard Medical School.
Visit the lab websiteHow to cite this website
Use the website title, page title, URL, and the date you accessed the page.
Cochlear Gene Therapy. Hearing Loss Gene Therapy Registry. https://cochleargenetherapy.org. Accessed [month day, year].
When citing a specific scientific or clinical claim, cite the original source listed in the Evidence Registry rather than this summary alone.
Frequently asked questions
What does this website cover?
It covers registered human studies of gene therapies delivered to the inner ear for hearing loss. The Studies page lists the programs currently included.
Where does the information come from?
ClinicalTrials.gov is used for study status, eligibility, design, dates, and enrollment. Program-specific peer-reviewed publications are used for scientific details and reported results. The Evidence Registry connects individual fields to their sources.
What does “Not publicly disclosed” mean?
No program-specific public source reporting that detail was found in the sources reviewed.
Does inclusion mean a therapy is approved or proven to work?
No. Inclusion means a human study or clinical program is publicly registered. Investigational therapies may not be approved, available, safe, or effective.
Can this website tell me whether I am eligible for a study?
No. Eligibility can change and must be confirmed in the official study record linked from each program and with the study team.
How often is the registry updated?
Records are reviewed when registries change, new program-specific evidence becomes public, or a correction is received. Material changes are listed in the Updates log.
How can I report an error or suggest a source?
Use the contact form. Include the program name, the field that needs review, and a link to the supporting source whenever possible.